An open letter to a friend who does not understand my fibromyalgia.

This letter is for you, my dear friend. I know that fibromyalgia is a difficult disease to understand, even for me. I wanted you to know that I miss your company and I share gossip, coffee and just laughing together. I miss you.

I will try to explain some ways in which fibromyalgia has changed my life and, ultimately, part of our friendship. First, you must know that it is not contagious. However, fibromyalgia has weakened me in many ways. It has also changed me, but it does not have to completely change our friendship. Let’s work together so we can remain friends for a long time.

Because fibromyalgia affects both the brain and the nervous system, it affects all areas of my body. Think about how you feel when you have the flu. Everything hurts, your balance is off, you have no energy, and all you want to do is sleep. It takes days before you start feeling like you again. This is my world every day. The fact is that, although I have some good days, this will never go away. I do not say that so you feel sorry for me, just as a point of clarification.
Although I will not always be able to attend the functions, meet for a coffee or go see a movie together, I still want to spend time with you. One thing that has been difficult for me is the inability to be spontaneous as it used to be. I have to plan things in advance. Even then, sometimes I have to cancel at the last minute if my pain or fatigue is out of the graphics. I hope that you give me the grace for those moments.

I am always happy to answer any question you have about fibromyalgia, and I promise to stop if your eyes start to cloud. I’m sure I never expect you to change your plans because of me, I just want you to know that I’ll be thinking about you and wishing I could be there. I think one of the most difficult aspects of fibromyalgia is loneliness. So, even if I can not get out, it would be amazing if you had a little time to share a glass of wine or a cup of tea. We can make popcorn and watch a funny movie.

Just as sometimes you have to express what happens in your life, so do I. True friends stay together and are there for each other. So, although my life has changed drastically, my heart is still committed to our friendship. You are very important to me, never forget that ..

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